Continuous Throbbing Headache!!!

So I was hoping that I would be able to slide into September without a headache, but it is NOT looking good. Yesterday, since I still was dealing with a monster headache I decided to make an appointment with anyone available at my doctor's office. So today, I had an appointment with one of the PAs. I had seen her a few weeks ago, so it turned out to be good. She decided to do a STAT CT scan of my head (which was normal) and some STAT lab work (all normal). Then she talked about doing a Lumbar Puncture (which for those who don't know is when they put a needle in your spine and test spinal fluid for pressure or infection, disease). So, tomorrow AM I am going to have the lumbar puncture done after that not sure what will happen. I am taking things, still ONE DAY AT A TIME.

OH, and I decided to chop all of my hair off so that I don't have to work so hard to get ready to go places. When I got back, my niece Elizabeth saw me and laughed (I told her I was going to get it cut short and she was worried I would look like a boy). I said do I look like a boy, she said, "No, you still look like Aunt Hannah." She makes me laugh :)

Taking it a Day at a Time!

Yesterday, I decided that despite the head cold, the major headache, and POTS I went to church. It was so wonderful to be in the House of the Lord. It was so nice to be able to fellowship with God's people and to hear the Word of the Lord again. I missed it so much. I also had the wonderful opportunity to talk to an old friend from Arizona (Manny it was so great to hear your voice). I miss my far away friends. It is amazing how getting in touch with friends can uplift your spirits and make you have a better day. I am so thankful for the network of prayer warriors that I have across the United States. The Lord has really blessed me.

I was very uplifted yesterday....this morning I found some Psalms to get me through the day and the Lord showed me how important it is to take each day at a time.

Psalm 5:3, 11-12
"My voice shalt thou hear in the morning, O Lord: in the morning will I direct my prayer unto thee, and will look up. But let all those that put their trust in thee rejoice: let them ever shout for joy, because thou defendest them: let them also that love thy name  be joyful in thee. For thou, Lord, wilt bless the righteous; with favor wilt thou compass him as with a shield."

A good nights sleep goes a long way!!!

It is pretty bad when the only way that I can get a good night's sleep is to be really medicated to get one. Last night I had a whole handful of prescriptions from neurologist, but it was too late to get them filled, so yet again I darkened the doors of the ER to see what they could do for me to get me through the night until I could get them filled. They gave me some anti-nausea and pain meds and sent me right home. I slept like a baby all night....and finally woke up with NO headache. Maybe I just needed to get some good sleep. I have a little headache today, but the doctor gave me some medicine to take for that. My POTS is still really out of control...my heart rate was everywhere, but I had stopped my one medication to see if it was causing the migraine. I started to take it again this morning, hopefully it will kick in and my heart rate will start to calm down and my life will start to be a little more normal....hahaha.

A new day, always a new adventure :)

Yesterday. I tried to take it easy, but you cannot keep me down. I stayed down all day, but despite the increasing head pain I kept going. I decided that I wanted to go and pick black berries with my sister-in-law. So I threw my chair over my shoulder and grabbed my bucket and off we went. I only sat in the chair a couple of times because it was more work to get up and down then just stay standing. Half way through the pickin' I decided to take a break....well, my chair wasn't quite on steady ground and I tipped right over backwards...I bet the BEARS got a belly laugh out of that. I sure did....my leg is sure bruised today though.

So the longer the day went on the worse my headache became....sometimes I just wonder what the LORD has in store for me....looking forward to that glorified body that is for sure.

My mom ended up taking me to the ER so that I could just get some pain relief...I got some pain meds and got home around midnight, so I was able to get a few hours of sleep before the pain came back in full-force. I am off to the neurologist in Elmira today, maybe she can help me....PLEASE PRAY!!!!

I woke up with this verse on my mind:
PSALM 121:1-2--"I WILL LIFT UP MINE EYES UNTO THE HILLS FROM WHENCE COMETH MY HELP. MY HELP COMETH FROM THE LORD, WHICH MADE HEAVEN AND EARTH."

Comfort from God's Word

Psalm 73:23-28

"Nevertheless, I am continually with thee: thou hast holden me by my right hand. Thou shalt guide me with thy counsel, and afterward receive me to glory. Whom have I in heaven but thee? And there is none upon earth that I desire beside thee. My flesh and my heart faileth: but God is the strength of my heart, and my portion for ever. For, lo, they that are far from tee shall perish: thou hast destroyed all them that go a whoring from thee. But it is good for moe to draw near to God: I have put my trust in the Lord God, that I may declare all thy works." 

Gaining!!!

Yesterday, I was able to make it home from the hospital in Pittburgh after spending yet another 4 days there. I did make some improvement. I don't have much of a headache and the dizziness it down to where I am not stumbling across the floor :) The ride was long, but I am glad to be home. They put me on one medication for a week to ward off the migraine and I am trying to slowly increase my strength. I did slowly take myself off of the one medication for POTS, not sure if that did anything or not...we will have to wait and see. Please continue to pray for me as I try to increase in strength.

Another POTS day!!!

So today....I barely made it out of bed....laying flat or reclining almost flat is the position the appears to be the only one that I can function in. I am trying to keep a POSITIVE attitude. I knew that I had a doctor's appointment so I had my hopes up...not sure why?! So needless to say, I managed to get myself dressed, what a chore....brushed my teeth and then had to lay down :(

I finally made it over to my appointment and had to go in via wheelchair (the ride of luxury). I of course almost passed out walking down the hall, but made it up on the table and everything looked normal. I told the nurse who of course by this time knew everything was not NORMAL. I stood up and my vitals all went to POTS :) They had me lay down and the doctor peaked his head in and said he would check on me in a few minutes. He contacted my Electrophysiologist in Elmira and now I have to go to Elmira tomorrow am at 9:00 and discuss the possibility of a pacemaker???? 

Please pray for me as I am a little scared of all of these possibilities and feel very crummy.

Daily Gaining Comfort From the Lord

So my day did not get any better....I went from feeling really bad to only worse...of course when I call the doctor's office they say...."You need to go to the ER". After turning blue there I am a little scared of stepping foot inside there but deside I actually might feel bad enough today to do so. I went and 4 hours later they tell me everything is ok but that I have low potassium....nothing new to me....probably just one of those POTS days. Of course it was not really a NORMAL POTS day for me because my heart rate was low and my BP was everywhere, but now all of that has changed. After taking a nap, my heart rate was back to the POTS self all over the place 130 just sitting and then up into the 150s-160s just standing. Still feel really crummy but I will see the doctor tomorrow.

I Know that Psalms 71 is for the elderly looking on to the future of their heavenly home, but I have taken quite a bit of hope in it the last couple of days.

Psalm 71:20-21--"Thou, which hast showed me great and sore troubles, shalt quicken me again, and shalt bring me up again from the depths of the earth. Thou shalt increase my greatness, and comfort me on every side."

I am daily gaining comfort from the Lord, this is the only way that I am getting by.

Just Keep Trusting In Him!!!

There are days when I wake up and the sun is absolutely brilliant and I have no pain, there is no struggle to get out of bed, and the day ahead looks bright and full of life. These days I am now stopping and praising the LORD for more specifically. I am not sure why the LORD has allowed the trials to come into my life, but I do know that I am going to try and use these trials to mold me each and every day.

Yesterday, I was almost headache free....so I thought since my mom is still in the hospital with some sort of Gastro issue (the doctors are still working on), I would try to catch up on the dishes and I also had the nieces throughout the day. I ended up watching a total of 6 of them throughout, not all at once...and my dad was a huge help. I know he is struggling with this all as well. I had to stop and take a CAT nap with Shyanna when I put her to sleep, but that was ok with me. When I hit bed last night I was totally exhausted, I should have known.....

This morning, when I got up I have a headache and my blood pressure is all out of whack....I almost took a nose dive getting out of bed. I am guessing that it is the decrease in medications and my body being totally exhausted. Anyway, I am sitting in the chair, sucking down some water for now....hopefully this will bring up the BP.

I am also hopeful that my mom will come home today. I just have to remember that the LORD has a plan and a purpose for everything that has and will happen in my life.

Psalm 71:3--"For thou art my hope, O Lord God: thou art my trust from my youth."

Isaiah 26:3-4--"Thou wilt keep him in perfect peace, whose mind is stayed on thee: because he trusteth in thee. Trust ye in the Lord for ever: for in the LORD JEHOVAH is everlasting strength."

I just need to continue to place my trust in the everlasting Jehovah GOD who will be my strength in and through it all.

The Headache Continues....

I am currently at home....but it has been a long journey and I am not finished yet. After leaving Charles Cole still with a Migraine. I spent the day at home and then my dad and I decided to drive up to Stong's Memorial in Rochester on a Saturday night to the ER. What a trip that was....the ER was packed. We saw people with head wounds there were gunshot victims coming in and needless to say I was at the back of the line. We got there at about 9:30pm and did not leave until around 2:30 pm the next day with only a little bit of relief. The relief lasted for about a day and then I ended up going to Olean on Monday night....they too were quite busy, they did everything possible but no success. They decided to admit me, but I sat in the ER for 18 hours. Needless to say I am not to excited about going to the ER these days especially with migraines. I spent Tues and Wed and then on Thurs I was transferred to Elmira because that is where my neurologist is, thinking that she would be able to treat me and I could go home since this has gone on in the past. The treatments failed so they stood around wondering what to do. They decided that Rochester would be the place to go. So that took a few days to work out. Meanwhile they are feeding me narcotics and hoping to keep me comfortable. They found an excepting doctor, but no beds. I waited 3 days for beds and then yesterday they came in and told me they would not accept my insurance. So I said send me home I will figure something else out. During all of this they had psychiatrist see me to see if my migraines were related to depression, stress, or panic disorder :) and put me on a massive dose of medication causing me to sleep all day one day. Now they want me to go see him for therapy.....came home and quit taking the medication and I am not going to therapy either. HEHE I go to the doctor this afternoon I am going to see where that gets me and may try to get to geisinger in Dansville, Pa they have a headache clinic there. Please continue to pray. It is because of your prayers that the Lord has given me strength to carry on.